But the thing was, I knew no verse so heard mam whisper, and watched intently as she mimed it out to me from the congregation. ...... along with many other miming mams . In fact the cacophony of whispering and miming mams made for a terrifying sight and sound to mini-me, aged only three .....
Rambles from an old dear who has lived with MS (Multiple Sclerosis) for longer than I care to remember but who lives well with it . Counting blessings each step of the way
Sunday, October 27, 2019
Duw. Cariad yw.
But the thing was, I knew no verse so heard mam whisper, and watched intently as she mimed it out to me from the congregation. ...... along with many other miming mams . In fact the cacophony of whispering and miming mams made for a terrifying sight and sound to mini-me, aged only three .....
Friday, October 25, 2019
A bird's eye view
Thursday, October 24, 2019
The Polyglot
Friday, October 18, 2019
The Gift of Friendship
A little ditty that I came up with a few years ago ...
Tuesday, October 15, 2019
Home Comforts
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Sunday, October 06, 2019
For as ye sow, shall ye reap
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Thursday, October 03, 2019
In the middle of the maelstrom
Tuesday, October 01, 2019
Notes for an Organist
Note: I'd add that the reader should imagine this being performed at an accelerando pace; accompanied by steel drums and ending with an abrupt stop.
Friday, September 27, 2019
Back where we belong
Sunday, September 22, 2019
A LESSON LEARNED FROM A SPIDER
(An adaptation by me of something I once read in an email subscription )
I can't pretend to be too fond of spiders, especially those large ones that creep into our homes at this time of year, especially given that I inadvertently trod on one in bare feet on my way to bed last night and squished it . Eeeeeew! 🤢 but I do believe in the sanctity of life which posed a bit of a dilemma..... and a matter of double standards being a pescatarian with the odd bit of meat thrown in 🤔
Wednesday, September 18, 2019
Lle i enaid gael llonydd ?
Roughly trans: a place for the soul to find peace
Saturday, September 14, 2019
Who is Derek ?
An excerpt from my book ‘Stumbling Along - Journey with the Master of Surprises ‘
"Ah, the unique and unpredictable circadian rhythms of the MSer”
However, there was a time when our Steff was younger, I used to take myself off to my sanctuary, my haven of peace and tranquillity which is my bedroom in the afternoons in order to gather some strength for the coming evening.
Saturday, September 07, 2019
I love the Moon, the Moon loves me....
Tuesday, July 30, 2019
In Sickness and in health
THE JOURNEY BEGINS
Now here’s a bit of useless information I found on the World Wide Web about the tradition of throwing rice:
“The basis for the predominant theory as to why rice and other grains, such as wheat, have played a prominent role in marriage ceremonies for centuries, is that they are fraught with symbolism of fertility and of prosperity. By throwing rice at the bride and groom at a wedding, guests symbolically wish them a lifetime full of these blessings.”
All I can say is that fertility and prosperity were not things I was ever blessed with. I may have been bestowed with all the female requirements regarding fertility but I think that someone forgot to chuck the Fison’s Fertiliser my way at the right time because I only managed to produce the one sprog, and as for prosperity - just how do we measure that? In monetary terms? If so then I must have gone to the wrong cash dispenser; if measured in indefinable or ethereal terms, then I admit to having riches beyond my wildest dreams. Let me invite you to our honeymoon…
Question: What is a honeymoon salad
Answer: Lettuce alone
Read on and you’ll understand the relevance of the joke. Huw was entirely in charge of the honeymoon arrangements. He’d consulted with one of his colleagues in school and she’d given him an Egon Ronay guide to the worst honeymoon destinations in the history of history itself.
What was really mind-boggling however, was that he’d booked a village Inn in North Cornwall without mentioning it to his colleague; when he returned the guide to her and she asked him if he’d found it useful it emerged that she too had booked in the very same place for the very same week with her husband and ten year old son. The obvious disadvantage was that their room was next door to ours and we had very thin walls.
We made a pact with them: “You keep schtumm and we’ll keep schtumm!”, about the arrangements, that is – I mean how can you keep quiet on your honeymoon, eh?
Our
little secret had its benefits however because when we arrived there at
Hindsight is wonderful isn’t it? I now know I must have had MS developing in the quiet, insidiously evil way it does, because I felt an overwhelming need to sleep every early-evening after a day’s sightseeing.
We’d get back to the Inn and I would crash out on the bed to sleep the sleep of the dead; it was indeed the sleep of the dead because I must surely have gone to hell on the Monday evening because I was woken very suddenly from my nap by (imagine Sandie Shaw) “I-I-I-I wonder if one day that you say that you care, If you say you love me madly, I’ll gladly be there. Like a puppet on a stttrrrrrriiiinnggg!” It was the local brass band standing right under our bedroom window where they congregated every Monday night for band practice.
We only have to hear the opening chord of ‘Puppet on a String’ on the radio or telly now and we both just look at each other and laugh, myself in particular, remembering the reverberation of that brass band in my eardrums, right through to my semi-circular canals and into the now de-myelinated right ventricle of my brain.
We developed a routine of spending the day sightseeing followed by me napping on the bed whilst Huw read a book. Just how many honeymoon couples read a book, huh? Refreshed from our rest we would join our friends and some of the locals in the bar for a toasted sarnie or chicken and chips ‘in the basket’. Huw had teasingly ordered soup in the basket one evening only to be told it wasn’t on the menu that evening but that maybe it would appear later in the week.
We were totally bemused by the rural routine of that village such as the brass band; Postman Pat’s Cornish cousin, Postman Pastie, picking up the mail the same time everyday; the farm tractor going in one direction first thing in the morning then returning whence it came the same time every evening. But hah! the best was yet to come on the Thursday evening because I was woken up from my evening nap by a very loud clanging coming from the church campanologists practising their cadenced carillons, directly opposite our bedroom. It is yet another memory which exercises the chuckle muscles.
Within
walking distance of our
We
stepped off the train looking like speckled hens, so a bath was in order when
we got back to our
I’ll say it now and I’ll repeat it over and over so much that you’ll need Remegel® by the end of the book, that I am not a good sailor. Whether this is MS related or not, no doctor has ever been able to tell me though one thing stands and that is the fact that I have vestibular damage; though ‘stands’ is hardly the right word in the following story.
I’m
reminded of a particular jaunt during our honeymoon week to the sleepy seaside
village of Padstow, not that you can describe it as ‘sleepy’ since Rick Stein
moved in; it’s now a positive hive or should I say, a fish-tank of activity.
We
decided to take a boat trip out to “
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E: “How long is this trip exactly?”
H: “About an hour and ten minutes.”
E: “You mean I have to suffer this for another 60 minutes??
H: “Uh- huh”
E: “What d‘you mean by just ‘Uh huh?’ I can’t tolerate this for that long!”I was feeling completely disorientated by the upwards, downwards, sideways, thisways, thatways motion as we hit the open sea but people around me were beginning to get seriously seasick. People right next to me and all around me were violently throwing up over the edge or onto the deck below.
E: “I really need to go to the loo for a wee,”.......because I wasn’t feeling nauseous but my bladder had the sudden urge (another pre-cursor to MS?) to empty itself.
H: “Well if you must.”
E: “I must. I’m going” as I staggered amongst the throngs of chuckers-up.
I weaved and bobbed my way to the lower deck only to find even more people puking as they queued for the toilet, the sight and sound of which suggested to my bladder that it didn’t really need emptying, so I made my way back unsteadily to a calm as ever looking Huw.
The voyage was gut-churning and I was trying hard to hold on to some kind of fixed point on the horizon, just like ballet dancers after doing a long pirouette, to keep myself orientated. I started muttering inside my head, “Our Father, which art in heaven….”...another big wave….”hallowed be thy name...” …another wave….”Thy Kingdom come…” …another gut churner… and so on… “Forever and ever … OKAY THEN take me Lord, I’m YOURS!”
It
felt that dire when suddenly we seemed to round
E: (green-faced) “This is purgatory.”
H: “I must admit it’s a bit rough.”
E: “A bit??”
After what seemed to be eternity we started gliding back up the calm waters of the estuary and as we dis-embarked, Huw asked the ‘driver’, “Is it normally as rough as this?” “Arrr, no sir,” (imagine Cornish accent) “If I had known it would have turned out this bad, I would’ve cancelled the sailing.”
We sat on the quayside for half an hour to steady my legs, followed by a sherry in a hostelry to steady my nerves.The honeymoon tale ends with note about a fig leaf. The church opposite the pub boasted a fig tree growing out of its walls. Legend has it that anyone who dared touch it would be struck down dead within a short time of doing so. There was a book inside the church which kept a record of people who had died shortly after coming into contact with it. We dared each other and we hesitated; we double-dared each other and hesitated again, then thought at least that if we ‘go’ we’d ‘go’ together. We’re still here twenty-nine years later. I never was superstitious.